Participant Annual Reporting - 12 Month caregiver check

[id2359]

Need to fix:

• importer
• templates
• fan out of responses to wizard
• emission of links via management command

Issues on wizard:

• some sections contain calculated fields
• The condition status fields seem confused - they're included in the section sometimes
• seizures not a section?

From the document:

12 Month caregiver check
Clinician Access
Permission given to [insert clinician /s names] to access your personal identified information. Yes/no [Change link]
[Current address] yes/no/change
Trials and Studies
IF they entered yes to 11.1.1 about trials/studies show what they have entered
Trial name – still participating/no longer participating  (we will need a new capture field for this so we have current status)
Have you or are you participating in any new studies or clinics since you last visited us
If yes show list.
Weight
Please enter individuals current weight
Illness and medical
Last time that you visited us you we asked you about illness/s and medical problems can you please the current status (we will need to have a status for each condition that we capture because we do not currently)

    • Pneumonia/Respiratory  [entered value]  is this correct yes/no/unknown
    • IF yes is the condition ongoing
    • Strep Throat
    • Gastroesophageal Reflux
    • Constipation
    • Vomiting with Feeds
    • Gagging
    • Tight Heel Cords or Toe Walking
    • Scoliosis
    • Dental Problems
    • Obesity  (we need to define what this is or ask for height weight first to determine if BMI is over a set value?
    • Failure to Thrive
    • Tube Feeding
    • Eye Problems
    • Hearing Problems
    • Neurological Problems
        ◦ auditory processing disorders
        ◦ Cortical myoclonus (tremors)
    • Other Medical Problems
    • Allergies 
    • Intolerances
If anything has changed, we need to show the additional capture fields in that question.

Since [last date entered about hospitalisations] has [individual name] had to attend hospital for any reason? Yes/no/unsure
If yes go to the add hospitalisation button

Seizures
IF they ticked “no” to 4.5.1 which is have they had seizures
You previously indicated that [individuals name] has not experienced seizures, has this changed yes/no/unsure
IF they dicked “yes” to 4.5.1 show the next indented questions
What is [individual name]’s current seizure status
    • Controlled with medication
    • Uncontrollled with medication
    • Controlled without medication
    • Uncontrolled without medication
    • Unknown
(Im hoping this can populate a new field where we capture this as above)

Please advise if any of the following have changed 
List seizure types 
Type - [entered value] is this correct yes/no/unknown

Current medications
Are the following medications still being used and with the same dosage
List 
Medication – Dose [strength], [Dose]    Correct/Changed dose/Stopped  

(if stopped needs to show other fields)

Are there any new medications yes/no/unknown   (if yes show add medication button)
Diagnostics 
Have you had any diagnostics such as EEG, Blood test, MRI, Cerebral spinal fluid or other since you last visited the Angelman registry on [insert date]   yes/no/unknown
If yes show add button

Ask for feedback ?? Email link 

[id2359]

Annual Participant Reporting.docx

[id2359]

I've created a branch wizard_reviews for this in base rdrf and angelman

[id2359]

Need to fix:

• importer

• templates

• fan out of reponses to wizard

• emission of links via management command

[id2359]

From Meagan's email July 12 2019:
So just clarifying

Annual review -
Instead of trying to incorporate the medications multisection link to the existing section at the end (if you can show the values to see if they need to go there or not it would be great but I do expect this would be one most people would change over the year)

As I said it would be awesome to get at least these out by our US trip - absolutely amazingly awesome to get clinician functionality as well. ;)