Over 7000 rare diseases impact people worldwide and have insufficient research and treatment available due to how infrequently these conditions occur. Historically, research has placed time and resources into topics that have profit, repeatedly underrepresenting rare diseases. For rare disease patients, they often do not receive a diagnosis for their disease, let alone be supported by treatment that makes a difference.
RAREserved is a student organization at the University of Washington, Seattle, that seeks to amplify voices to make knowledge about rare diseases accessible and engaging by telling real stories of those impacted by a rare disease. RAREserved conducts interviews and creates a narrative article that shares an individual's experience. They seek to educate their audience on rare disease topics and advocate for change and awareness of rare diseases as a marginalized community in healthcare. RAREserved recognizes the importance of diversity, equity, and inclusion in healthcare and research. Their mission is to raise awareness and knowledge for the pursuit of better change.
Visit their website at rareserved.vercel.app to learn more!
This RAREserved website was created by 5 people under Husky Coding Project at the University of Washington, Seattle.
Special thanks to those in Husky Coding Project who supported us along the way. :)